We love to hear back from families that we have been able to support but also fully understand that they are so consumed with caring for their sick child and getting through each day that they do not have the time to do so.
So when we do receive letters, emails and phone calls they really inspire us.
The honesty and appreciation expressed can be very moving but uplifting and we are so happy when we are given permission to share them with our supporters so that all of you can fully understand the difference your support can make.
This recent one may be long but too special to edit and not to share in full